Category Archives: Stigma

Dealing With HIV-Related Discrimination or Stigma in a Health Care Setting

From Poz Magazine online…

Alora Gale thought that by the late 2000s, most—if not all—medical providers understood that HIV does not survive long outside the body and cannot reproduce outside a human host. “Even in 2008, a quick Google search would’ve answered this question,” says Gale, 40, a Seattle-area resident who was born with HIV and formerly ran BABES, a longtime peer group for women living with HIV. But that year when she spoke to her longtime ophthalmologist about having LASIK surgery to improve her vision, the ophthalmologist consulted a LASIK-performing colleague who warned that Gale’s HIV “could become airborne and infect everyone in the room,” Gale recalls. On that basis, she was deemed ineligible for surgery.

doctor holding H.I.V. ribbon and stethoscope

“That’s the BS my doctor accepted and brought back to me,” she says. Despite being a longtime advocate for people living with HIV, she says she was so “shocked, dismayed and bewildered in that moment” that she just walked out without saying a word. “When things like that happen in a trusted space, it just hits differently, and I wasn’t ready to fight back.”

But that soon changed. Gale called her ophthalmologist and asked to have her records transferred to a different provider. Didn’t she want to try to talk through it first? “Absolutely not,” she says. She felt the claim was so far-fetched that the doctor should have researched it to learn that it wasn’t true.

Read the full article.

HIV Friendly raises awareness regarding HIV in Pennsylvania

A new state-wide program seeks to raise awareness and build HIV Friendly communities.

Diverse group of people holding H.I.V. ribbons

Created by the HIV Prevention and Care Project at the University of Pittsburgh, School of Public Health, HIV Friendly serves as an educational campaign designed to increase awreness and to share resources regarding HIV. To register for an HIV Friendly presentation, visit the HIV Friendly registration page.

Participants who attend an HIV Friendly presentation will learn the basics of HIV, identify the ways in which stigma and discrimination negatively impact people living with HIV, and learn how to create inclusive, HIV Friendly communities for all Pennsylvanians.

Find out more at HIVfriendlyPA.com.

Study: Stigma Remains Primary Health Concern in Patients With HIV/AIDS

From ajmc.com

HIV stigma comes in many forms. HIV.gov defines stigma as any “irrational or negative attitudes, behaviors, and judgements toward people living with or at risk of HIV.”3 This can include people refusing contact with someone living with HIV, refusing care to those who have HIV, or socially isolating someone who is living with HIV. Those who are at a higher risk of HIV may be affected by stigma due to their gender identity, sexual orientation, drug use, race/ethnicity, or sex work. On top of this, internalized stigma is prevalent in people living with HIV, as they may have negative feelings or thoughts based on their status. About 80% of people receiving care for HIV reported feeling internalized stigma.3 Depression, anxiety, isolation, and feelings of shame are all results of this.

Red ribbons

Read the full article on the AJMC website.

AIDSVu Adds Visualized Data on Stigma

From poz.com

With a goal of reducing and tracking the stigmas that act as a barrier to HIV prevention, treatment and care—as well as a hindrance to better overall health outcomes—AIDSVu recently added a new online feature, the JHU Stigma Dashboard that offers visualized stigma-related data. Currently, the dashboard tracks sexual behavior stigma in Georgia, New York and Maryland. Specifically, it includes data on men who have sex with men in those states. Additional data and geographic areas will be added to the dashboard in future phases.AIDS V U map graphic with logo

AIDSVu map tracks HIV in the U.S.

Johns Hopkins University (JHU) researchers Amrita Rao, PhD, and Stefan Baral, MD, created the Stigma Dashboard to showcase progress to eliminating stigmas across different geographic regions in a tangible way.

Stigma comes in many forms and can negatively affect the way people living with and at risk for HIV interact with medical professionals and adhere to HIV treatment and prevention. What’s more, there are many types of stigma that affect a person’s wellbeing and engagement in care. Racism, homophobia, transphobia and HIV stigma are but a few examples.

Read the full article.

Americans Are Becoming More Uncomfortable Interacting With Co-Workers Living With HIV, Report Shows

From Forbes online…

Every year, GLAAD–the Gay & Lesbian Alliance Against Defamation–releases a report with the Gilead COMPASS Initiative detailing how Americans’ attitudes and awareness of HIV and HIV stigma have changed.

According to the 2023 report, 86% of Americans believe HIV stigma still exists. However, acceptance appears to be heading in the wrong direction as intolerance towards certain people living with HIV is worsening.

Roughly 41% of Americans said they would feel uncomfortable interacting with a barber or hair stylist living with HIV, up from 37% in 2022. Moreover, a significant portion of individuals said they would feel uncomfortable interacting with a teacher (33%) and co-worker (32%) who are HIV positive, an increase from 29% in 2022.

Read the full article.

Let's stop HIV together

To find out more HIV stigma, visit the CDC’s Let’s Stop HIV Together information page.

Ending the HIV Epidemic in the U.S. Requires States to Update Outdated HIV Criminalization Laws

From HIV.gov

“HIV Is Not a Crime Awareness Day” was created in 2022 by The Sero Project in collaboration with The Elizabeth Taylor AIDS FoundationExit Disclaimer and other grassroots organizers, bringing together communities, people with HIV, governments and other partners to stand in unity against the harm caused by laws that use a person’s HIV status in criminal prosecution. Today, February 28, was chosen to bridge Black History Month, Women’s History Month, and several other HIV awareness days.

H I V is not a crime awareness day logoModernizing these laws is an essential element in ending the HIV epidemic. The National HIV/AIDS Strategy (2022–2025) recommends policies and priorities that can help end the HIV epidemic in the United States. Achieving the goals of this national strategy requires addressing stigma as well as structural barriers to HIV prevention and care. A key part of this effort is examining how laws and policies can inhibit positive change and exacerbate harm and the national strategy encourages reform of state HIV criminalization laws.

All state laws and practices should be informed by science, and in the case of HIV criminalization laws, most are not. 1 In addition, the implementation of HIV criminalization laws was not associated with reduced HIV incidence. Modernizing outdated state laws and practices is necessary.

Read the full article.

A Call to End Stigmatizing Language in HIV Research

From positivelyaware.com

A coalition of HIV activists and about 50 organizations are sending a letter to the National Institute of Allergy and Infectious Disease (NIAID), calling on the agency to require the use of non-stigmatizing language in HIV research.

Addressed to NIAID director Jeanne Marrazzo, MD, MPH, who was named to the position last August by the National Institutes of Health (NIH), the letter asks for changes in HIV-related language policy to be established across the organization, removing stigmatizing and dehumanizing terms such as HIV-infected, populations and subjects when referring to people living with HIV. As one of the 27 agencies within the NIH, NIAID conducts and provides federal funding for research on infectious diseases, including HIV. The proposal would apply to all NIAID-published documents, including grant applications, materials for clinical trials and NIAID-funded research papers.

“We are calling on you as the new NIAID Director to create a new era, fostering the use of appropriate and person-centered language for a new generation,” the letter said.

Positively Aware banner and logo

Read the full article.

Tell Me About It: busting myths and celebrating progress

From aidsmap.com

Tell Me About It: HIV Conversations in the Community is a six-part podcast series of honest conversations, sharing accurate and trustworthy information about HIV and sexual and reproductive health in a friendly and open way.

Tell Me About it: Busting myths and celebrating progressIt’s a personal, engaging and honest look at what it really means to live with HIV today, and how that’s changed significantly over the years. Each episode shares developments in prevention and treatment that allow people living with HIV to live long and healthy lives free of fear, and shatters some of the most damaging myths about HIV and its impact on sex, life expectancy, starting a family, staying well, mental health and public attitudes.

It was inspired by the conversations that people living with HIV often find themselves having with those unaware of how HIV has changed in recent years: How did you get it? Aren’t you just a drain on NHS resources? Can I catch it off you? Will you die young?

Hosted by writer, researcher, international performance poet and TEDx speaker Bakita Kasadha, each episode is a conversation between people sharing their experiences of HIV. Most pair a person who is living with HIV and another person who does not have the virus.

Read the full article on aidsmap.com.

New National Challenge to Reduce HIV-Related Stigma and Disparities

From POZ.com

The U.S. Department of Health and Human Services (HHS) has launched The HIV Challenge, a national competition to engage communities to reduce HIV-related stigma and increase prevention and treatment among racial and ethnic minority people. The HIV Challenge is part of a new partnership between the Office of the Assistant Secretary for Health (OASH) Office of Infectious Disease and HIV/AIDS Policy (OIDP) and the HHS Office of Minority Health (OMH).

 

Through this challenge, HHS is seeking innovative and effective approaches to increase the use of pre-exposure prophylaxis medication (PrEP) and antiretroviral therapy (ART) among people who are at increased risk for HIV or are people with HIV. The HIV Challenge is open to the public, and HHS will award a total of $760,000 to 15 winners over three phases. Phase 1 submissions are open from July 16, 2021, through September 23, 2021.

“HIV-related stigma is one of the reasons why prevention and treatment options, such as PrEP and ART, are underutilized,” said Assistant Secretary for Health, Rachel L. Levine, M.D. “The latest science shows that people living with HIV who take the proper medicine as prescribed and get and keep their HIV at an undetectable level do not transmit HIV to others.

Read the full article.

Stigma Remains a Barrier in HIV Prevention and Treatment

From newswise,com

Stigma and discrimination, such as homophobia and racism, impede engagement in HIV prevention and use of biomedical tools for treatment in both HIV-negative and HIV-positive gay and bisexual men, according to a Rutgers study.

The paper, published in AIDS and Behavior, examined the impact of stigma on HIV-related outcomes among gay and bisexual men in the U.S.

man standing alone on a dock

Despite recent advances in HIV prevention and treatment, and access to biomedical interventions that can hasten the end of the HIV epidemic, gay and bisexual men continue to be disproportionately affected by the virus.

Read the article on newswise.com.